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The I-CAH Registry provides the means of connecting clinical and research centres around the world and allows these centres to collect standardised information aimed at improving clinical practice, research and understanding of conditions affecting sexual development and maturation.

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Recent News

The 8th I-DSD Symposium in 2021 will be held as a webinar on the 8th and 9th July 2021.

New Publication for I-CAH. Ali et al ‘Real World Estimates Of Adrenal Insufficiency Related Adverse Events In Children With Congenital Adrenal Hyperplasia’ ‘JCEM Sept 2020’

August 2020 newsletter

Launch of new I-DSD/CAH Registry Platform (May 2020). Full details of the New Platform

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About

In April 2020, the Registry has reached over 1500 cases of CAH with a median age of 16 years from 70 centres from 27 countries in Africa, Asia, Europe, North America and South America.

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