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The I-CAH Registry provides the means of connecting clinical and research centres around the world and allows these centres to enter standardised information aimed at improving clinical practice, research and understanding of conditions affecting sex development.

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Recent News

The I-DSD 2021 programme organising committee has now finalised its speakers and faculty for the Scientific Symposium between 8-10 July 2021 and the Postgraduate Course between 6-8 July 2021 in Bern, Switzerland and as it moves into the logistical planning phase it is weighing up the pros and cons of holding a physical meeting versus a virtual meeting. To help it plan more effectively, the committee would value your views through this very brief survey. Please feel free to circulate the survey within your own networks.

New Publication for I-CAH.  Ali et al ‘Real World Estimates Of Adrenal Insufficiency Related Adverse Events In Children With Congenital Adrenal Hyperplasia’ ‘JCEM Sept 2020’

August 2020 newsletter

Launch of new I-DSD/CAH Registry Platform (May 2020).  Full details of the New Platform

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About

In April 2020, the Registry has reached over 1500 cases of CAH with a median age of 16 years from 70 centres from 27 countries in Africa, Asia, Europe, North America and South America.

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