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The I-CAH Registry provides the means of connecting clinical and research centres around the world and allows these centres to collect standardised information aimed at improving clinical practice, research and understanding of conditions affecting sexual development and maturation.

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Recent News

August 2021 newsletter

9th I-DSD symposium 14th -16th July 2021, Bern, Switzerland.

I-CAH abstracts at ESPE 2021

Recent News

Recent publications

Ali et al. Real world estimates of adrenal insufficiency related adverse events in children with congenital adrenal hyperplasia J Clin Endocrinol Metab 2021

Bacila et al.  International practice of corticosteroid replacement therapy in congenital adrenal hyperplasia – data from the I-CAH registry. Eur J Endocrinol 2021

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About

In April 2020, the Registry has reached over 1500 cases of CAH with a median age of 16 years from 70 centres from 27 countries in Africa, Asia, Europe, North America and South America.

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