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I-DSD/I-CAH Membership Fee:

Full Membership:

Standard annual fee full member – €100 (Low /Middle Income: €50)

Discounted annual fee full member for those who are known co-authors on full papers published within the last 3 years of membership using data from the registries: €50 (Low/Middle Income: €25)

Benefits:

– Discounted fee to the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow

– Eligibility for travel awards and presentation prizes at the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow

– Members’ directory of all condition-specific registries supported by the Office for Rare Conditions, Glasgow

– Newsletters of all registries supported by the Office for Rare Conditions, Glasgow

– The right to apply for a position on the Steering Committee or the Scientific Panel of all condition-specific registries supported by the Office for Rare Conditions, Glasgow

– Access to the members only section of the condition-specific registry supported by the Office for Rare Conditions

– Provision of clinical benchmark data for patient reported outcomes

– Free advice for initial research related enquiry to any registry supported by the Office

– Nominate auxiliary members

Associate Membership:

Reduced annual fee for those who would like to search other users and centres but not data – €50 (Low/Middle Income: €25)

Benefits:

– Discounted fee to the scientific meeting of the condition-specific registry

– Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry

– Member’s directory

– Newsletters and news alerts

– Access to the members only section of the website

– Fee for submitting enquiry to any registry supported by the Office

Auxiliary Membership:

This membership level applies for other users at a centre where a user is registered as a Full Member.

Benefits:-

– No membership fee

– Confirmation/support of Full Member required

– Discounted fee to the scientific meeting of the condition-specific network for up to 3 auxiliary members from each centre

– Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry network

– Member’s directory

– Newsletters and news alerts

– Access to the members only section of the website.

Patient/Parent Membership: 

Benefits:-

– No membership fee

– Access their own data

Please click here to create a new account.